Sickle Cell Treatment Demonstration Program

The objectives of this project is to support the development and establishment of systemic mechanisms to improve the prevention and treatment of sickle cell disease complications, including the coordination of service delivery for individuals with sickle cell disease; genetic counseling and testing;

credit: Wikimedia Commons
bundling of technical services related to the prevention and treatment of sickle cell disease; training of health professionals; and identifying and establishing efforts related to the expansion and coordination of education, treatment, and continuity of care for individuals with Sickle Cell Disease as authorized in Section 712(c) of the American Jobs Creation Act of 2004, Public Law 103-357.
Related Programs

Examples of Funded Projects

Fiscal Year 2016: No Current Data Available Fiscal Year 2017: No Current Data Available Fiscal Year 2018: No Current Data Available


Agency - Department of Health and Human Services

The Department of Health and Human Services is the Federal government's principal agency for protecting the health of all Americans and providing essential human services, especially to those who are least able to help themselves.

Office - See Regional Agency Offices.

Program Office: Edward Donnell Ivy, MD, MPH, Genetic Services Branch, Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health and Human Services, Room 18W56, 5600 Fishers Lane, Rockville, MD 20857; Telephone: (301) 443-9775.
Website Address

http://www.hrsa.gov


Relevant Nonprofit Program Categories





Program Accomplishments

Not Applicable.

Uses and Use Restrictions

All funds granted should be expended solely for carrying out the approved projects in accordance with Section 712 of the Public Law 103-357.

Eligibility Requirements

Applicant Eligibility

Eligible entities include, Federally-qualified health center, as defined in section 1905(10(2)(B) of the Social Security Act (42 U.S.C.

1396d(10(2)(B), nonprofit hospital or clinic, or university health center that provides primary health care, that: (1) has a collaborative agreement with a community-based Sickle Cell Disease organization or a nonprofit entity with experience in working with individuals who have Sickle Cell Disease; and (2) demonstrates that either the Federally-qualified health center, the nonprofit hospital or clinic, the university health center, the community-based Sickle Cell Disease organization or the Sickle Cell Disease experts who serve as consultants to the project have at least 5 years of experience in working with individuals who have Sickle Cell Disease.

Beneficiary Eligibility

Projects will benefit individuals with Sickle Cell Disease and health professionals who provide care for individuals with Sickle Cell Disease.

Credentials/Documentation

Applicants should review the individual HRSA notice of funding opportunity issued under this CFDA program for any required proof or certifications which must be submitted prior to or simultaneous with submission of an application package. This program is excluded from coverage under 2 CFR 200, Subpart E - Cost Principles.

Aplication and Award Process

Preapplication Coordination

Preapplication coordination is required.

Environmental impact information is not required for this program.

This program is excluded from coverage under E.O.

12372.

Application Procedures

This program is excluded from coverage under 2 CFR 200, Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards. HRSA requires all applicants to apply electronically through Grants.gov. All qualified applications will be forwarded to an objective review committee. Based on the advice of the objective review committee, the HRSA program official with delegated authority is responsible for final selection and funding decisions.

Award Procedures

Notification is made in writing by a Notice of Award.

Deadlines

Contact the headquarters or regional office, as appropriate, for application deadlines.

Authorization

Section 712(c) of the American Jobs Creation Act of 2004, P.L. 108-357.

Range of Approval/Disapproval Time

Final decisions are made approximately 2-3 months after receipt of applications.

Appeals

Not Applicable.

Renewals

After initial award, projects may be renewed annually up to the limit of the project period upon the submission and approval of a satisfactory continuation application.

Assistance Considerations

Formula and Matching Requirements

This program has no statutory formula. This program has no matching requirements. This program does not have MOE requirements.

Length and Time Phasing of Assistance

Awards are made on an annual basis for the duration of the grant period, and payments are made through an Electronic Transfer System or Cash Demand System. See the following for information on how assistance is awarded/released: Grantees drawdown funds, as necessary, from the Payment Management System (PMS). PMS is the centralized web based payment system for HHS awards.

Post Assistance Requirements

Reports

The awardee will be required to submit performance and progress reports as well as status-federal financial reports (see the program announcement and notice of award for details for each required report).

The awardee must submit a quarterly electronic Federal Financial Report (FFR) Cash Transaction Report via the Payment Management System within 30 days of the end of each calendar quarter.

A Federal Financial Report (SF-425) according to the following schedule: http://www.hrsa.gov/grants/manage/technicalassistance/federalfinancialreport/ffrschedule.pdf.

A final report is due within 90 days after the project period ends.

If applicable, the awardee must submit a Tangible Personal Property Report (SF-428) and any related forms within 90 days after the project period ends.

New awards (?Type 1?) issued under this notice of funding opportunity are subject to the reporting requirements of the Federal Funding Accountability and Transparency Act (FFATA) of 2006 (Pub.

L.

109?282), as amended by section 6202 of Public Law 110?252, and implemented by 2 CFR Part 170.

Grant and cooperative agreement recipients must report information for each first-tier subaward of $25,000 or more in federal funds and executive total compensation for the recipient?s and subrecipient?s five most highly compensated executives as outlined in Appendix A to 2 CFR Part 170 (FFATA details are available online at http://www.hrsa.gov/grants/ffata.html).

Competing continuation awardees, etc.

may be subject to this requirement and will be so notified in the Notice of Award.

Cash reports are not applicable.

Progress reports are not applicable.

No expenditure reports are required.

No performance monitoring is required.

Audits

In accordance with the provisions of 2 CFR 200, Subpart F - Audit Requirements, non-Federal entities that expend financial assistance of $750,000 or more in Federal awards will have a single or a program-specific audit conducted for that year. Non-Federal entities that expend less than $750,000 a year in Federal awards are exempt from Federal audit requirements for that year, except as noted in 2 CFR 200.503.

Records

Grantees are required to maintain grant accounting records 3 years after the date they submit the Federal Financial Review (FFR). If any litigation, claim, negotiation, audit or other action involving the award has been started before the expiration of the 3-year period, the records shall be retained until completion of the action and resolution of all issues which arise from it, or until the end of the regular 3-year period, whichever is later.

Financial Information

Account Identification

75-0354-0-1-550.

Obigations

(Cooperative Agreements) FY 16 $3,327,345; FY 17 est $3,327,345; and FY 18 est $0

Range and Average of Financial Assistance

FY 2017 $357,500 - $1,072,497; $714,998.

Regulations, Guidelines, and Literature

This program is subject to the provisions of 45 CFR Part 92 for State, local and tribal governments and 45 CFR Part 74 for institutions of higher education, hospitals, other nonprofit organizations and commercial organizations, as applicable. HRSA awards are subject to the requirements of the HHS Grants Policy Statement (HHS GPS) that are applicable based on recipient type and purpose of award. The HHS GPS is available at http://www.hrsa.gov/grants.

Information Contacts

Regional or Local Office

See Regional Agency Offices. Program Office: Edward Donnell Ivy, MD, MPH, Genetic Services Branch, Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health and Human Services, Room 18W56, 5600 Fishers Lane, Rockville, MD 20857; Telephone: (301) 443-9775.

Headquarters Office

Edward Donnell Ivy, MD, MPH 5600 Fishers Lane, Room 18W56, Rockville, Maryland 20857 Phone: (301) 443-9775

Criteria for Selecting Proposals

General criteria are described in Program Regulations 45 CFR 51, and specific criteria are included in the notice of funding opportunity materials provided with application kits.


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