Sickle Cell Treatment Demonstration Program

The purpose of this initiative for Sickle Cell Disease Treatment Demonstration Program is to develop and establish systemic mechanisms and partnerships to enhance access to services, prevention and treatment of sickle cell disease through coordination of service delivery, genetic counseling and testing,


bundling of technical services, training of health professionals, and efforts related to the expansion and coordination of education, treatment, and continuity of care for individuals of all ages with sickle cell disease.

The funded cooperative agreements will support the provision of coordinated, comprehensive, culturally competent and family-centered care for individuals of all ages with sickle cell disease through partnership networks comprised of Federally Qualified Health Centers (FQHC), non-profit hospitals or clinics and/or university health centers that provide primary care, working collaboratively with comprehensive sickle cell centers and community-based sickle cell disease support organizations or non-profit entities that work with individuals with sickle cell disease within the defined area.

The funded cooperative agreements will be involved in on-going data collection efforts as an evaluative method of the demonstration program
Related Programs

Sickle Cell Treatment Demonstration Program

Department of Health and Human Services

Who's Eligible

Relevant Nonprofit Program Categories

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Additional Information of Eligibility:
Eligible entities for this grant program will include any Federally-qualified health center2, non-profit hospital or clinic, or university health center providing primary health care that: (1) has a collaborative agreement with a community-based sickle cell disease organization or a nonprofit entity with experience in working with individuals with sickle cell disease; and (2) can demonstrate that it, this collaborative entity, or the experts described in section 712(c)(2)(C) of the American Jobs Creation Act of 2004, has at least five (5) years experience working with individuals with sickle cell disease.

Faith-based and community-based organizations that meet these qualifications are eligible to apply.

For the Networks, priority will be given to eligible entities that are: 1) Federally-qualified health centers that have a partnership or other arrangement with a comprehensive Sickle Cell Disease treatment center; or 2) Federally-qualified health centers that intend to develop a partnership or other arrangement with a comprehensive Sickle Cell Disease treatment.

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Agency Email Description:
Contact HRSA Call Center at 877-Go4-HRSA/877-464-4772;301-998-7373 or email

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